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How a Rare Disease Changed My Life
May 20th is Behcet’s Disease Awareness Day. This disease has been part of my life since I was a child. I can still place myself in that little seven-year old girl’s body, kneeling on my legs at the...
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Guest Post: Resource of a Rare Childhood Illness
Parents are always looking for more information about their child’s health diagnosis. Navigating their way through the unfamiliar territory of treatment plans, medications, terminology and the drastic...
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